$2,108.25
Dylan Cystic Fibrosis Australia
Dylan
$2,108.25
Cystic Fibrosis Australia
Dylan
Dylan

Blue's page has now expired

1057 days ago, Blue created this page in support of Cystic Fibrosis Australia.

With the help of 65 Beards for Cystic Fibrosis, Blue gave everything:

  • Shared their page with everyone they could.

  • Received 11 donations from generous family and friends.

  • Raised $2,108.25.

My Story

I've created this page because I want to make a difference. I'm inspired by the work of Cystic Fibrosis Australia and wanted to support them by raising money as part of my participation in 65 Roses CFA 2015. Please help me help them by giving whatever you can using the 'Give Now' button. The more people that know about Cystic Fibrosis Australia, the greater their impact, so please also spread the word by sharing my page with your friends and family. Thank you in advance for your generosity, it means a lot!

Team

65 Beards for Cystic Fibrosis

Logo

The aim of 65 Beards for Cystic Fibrosis is to get 65 blokes to grow beards for the month of May, raise at least $100 each during the month, then shave the beards off on the 29th of May (65 Roses Day). May is the national fundraising and awareness month for Cystic Fibrosis (CF) culminating in 65 Roses Day on the last Friday in May. The money raised will be going to the Australian Cystic Fibrosis Research Trust (ACFRT). As there currently isn’t a cure for CF the ACFRT’s job of funding research into finding a cure and improving medication, treatment and management of CF.

Cystic Fibrosis (CF) is a recessive genetic disease affecting 1 in every 2500 children born in Australia, that is approximately 1 child every 4 days and being genetic means both parents have to be 'carriers' of a CF genotype. 1 in every 25 people are carriers of the gene most of them unknowingly just like my parents. CF primarily effects lungs and digestive system of suffers due to a malfunction in the endocrine system which is responsible for producing saliva, sweat, tears and mucus. In CF this causes and abnormal amount of thick Sticky mucus within the lungs, airways and digestive system leading to an impairment of digestive function of the pancreas and trapping bacteria in the lungs resulting in recurrent infections which causes irreversible damage. There are also many other secondary problems that develop in relation to CF these include, the inability to gain weight, diabetes (which my sister Tahnee has), kidney and liver failure, broken bones due to calcium deficiency and polyps just to name a few. Lung failure is the most common and major cause of death for someone with CF. To counteract the symptoms of CF, patients have a strict regime of medications; including both oral and inhaled antibiotics (morning and night) and Physiotherapy/airway clearance to clear the mucus out of your lungs to help open up your airways as much as possible and decrease the risk of infection in your lungs (2/3x daily). We also have creon forte, which are pancreatic enzymes (as our bodies don’t make enough of these enzymes on its own) that help digest our food properly, and we have these every time we eat any food with fat in it (20-30 daily). We must consume a high calorie high protein diet to help put on weight, have regular (quarterly) checkups and possibly hospital stays called tune ups, are also a frequent occurrence with CF patients, resulting in a lot of school and work missed.
In many cases organ transplants are the only option for CF patients to begin to live a normal life, the criteria for a person to be able to receive a transplant is they must be under 30% lung capacity or rapid progressive respiratory deterioration, increasing number of hospitalisations, a rapid fall of FEV1 (forced expired air in the 1st second) and doctors must assess the patient to be a suitable candidate there are age restrictions, or if the patient has a multiple organism resistance to specific classes of antibiotics. The most common transplants are bilateral (double lung) transplants. Other transplants include single lung and heart lung and liver transplants.
To find out more go to http://www.cysticfibrosis.org.au/all/learn .

Please help by giving whatever you can and by spreading the word about CF, Thankyou in advance for your generosity.

Cheers

The 65 Beards Team

Visit Team
Team

65 Beards for Cystic Fibrosis

Logo

The aim of 65 Beards for Cystic Fibrosis is to get 65 blokes to grow beards for the month of May, raise at least $100 each during the month, then shave the beards off on the 29th of May (65 Roses Day). May is the national fundraising and awareness month for Cystic Fibrosis (CF) culminating in 65 Roses Day on the last Friday in May. The money raised will be going to the Australian Cystic Fibrosis Research Trust (ACFRT). As there currently isn’t a cure for CF the ACFRT’s job of funding research into finding a cure and improving medication, treatment and management of CF.

Cystic Fibrosis (CF) is a recessive genetic disease affecting 1 in every 2500 children born in Australia, that is approximately 1 child every 4 days and being genetic means both parents have to be 'carriers' of a CF genotype. 1 in every 25 people are carriers of the gene most of them unknowingly just like my parents. CF primarily effects lungs and digestive system of suffers due to a malfunction in the endocrine system which is responsible for producing saliva, sweat, tears and mucus. In CF this causes and abnormal amount of thick Sticky mucus within the lungs, airways and digestive system leading to an impairment of digestive function of the pancreas and trapping bacteria in the lungs resulting in recurrent infections which causes irreversible damage. There are also many other secondary problems that develop in relation to CF these include, the inability to gain weight, diabetes (which my sister Tahnee has), kidney and liver failure, broken bones due to calcium deficiency and polyps just to name a few. Lung failure is the most common and major cause of death for someone with CF. To counteract the symptoms of CF, patients have a strict regime of medications; including both oral and inhaled antibiotics (morning and night) and Physiotherapy/airway clearance to clear the mucus out of your lungs to help open up your airways as much as possible and decrease the risk of infection in your lungs (2/3x daily). We also have creon forte, which are pancreatic enzymes (as our bodies don’t make enough of these enzymes on its own) that help digest our food properly, and we have these every time we eat any food with fat in it (20-30 daily). We must consume a high calorie high protein diet to help put on weight, have regular (quarterly) checkups and possibly hospital stays called tune ups, are also a frequent occurrence with CF patients, resulting in a lot of school and work missed.
In many cases organ transplants are the only option for CF patients to begin to live a normal life, the criteria for a person to be able to receive a transplant is they must be under 30% lung capacity or rapid progressive respiratory deterioration, increasing number of hospitalisations, a rapid fall of FEV1 (forced expired air in the 1st second) and doctors must assess the patient to be a suitable candidate there are age restrictions, or if the patient has a multiple organism resistance to specific classes of antibiotics. The most common transplants are bilateral (double lung) transplants. Other transplants include single lung and heart lung and liver transplants.
To find out more go to http://www.cysticfibrosis.org.au/all/learn .

Please help by giving whatever you can and by spreading the word about CF, Thankyou in advance for your generosity.

Cheers

The 65 Beards Team

Visit Team

Thank You

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65 Roses CFA 2015

01 May 2015 31 May 2015 Visit this campaign

Donations Summary

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Charity

Cystic Fibrosis Australia